So if you haven't noticed finding time to blog has been a struggle! I still trying to figure out a routine...and now the boys are home so I scrapped the routine I was working on and decided my new routine is to have no routine!!
Things are so busy with 4 kids I can't believe it! We are still having a lot of challenges with Lauran. She is still as cute and lovable as can be, but when she doesn't get her way..OH MY GOSH... stand back and GET the ear plugs! She sometimes will go on and on for over an hour. I think there are many factors that play into it all, lack of verbal skill, strong willed, She IS 2(almost 3), and everything is still new. Some days are so hard though. Added to that, Megan still has many moments of her not wanting to share me, toys, etc. But the moments when everyone is happy they are all so much fun!! Listening to Lauran say new words and watch her devour food she likes is so cute! She ate a full 1/3 lb hamburger on Sunday! She is a meat girl!! Todd is already wanting to bring her to a steak house! The boys love to play with the girls and are really helpful with them. And when the girls have moments of playing together I can see glimpses of the distant future when they will be BFF's. Did you hear me girls? You WILL be BFF'S :)
On the medical front we are still doing weekly blood draws to see if we can determine a pattern with her hemoglobin. When we brought her in for her 2nd transfusion her blood had not dropped from week 3 to week 4. It was still at 10. They still did the transfusion though! Anyways, it could mean we may be able to go 5 weeks. So we will see! The blood draw they did last week unfortunately did not work with the finger pricking. It had clotted...which is a problem with doing it that way. So we repeated it this week the old fashioned way and it went amazingly well! She cried but it went in right away and it was less than 30 seconds of crying! I felt so bad though because when sat down in the chair she immediately put out her finger for them to prick her!!
Days can be cloudy or bright
3 weeks ago
3 comments:
Hang in there - one day at a time
:0) I tell Ellie and Evie - someday you will like each other, I promise!! Let's do the zoo or something fun SOON!!
Stacey
Okay, girls - I'm all about that, call me when you do the zoo...I have a zoopass and I'm not afraid to use it!!! :)
Aaaaaw, you are breaking my heart. I know this is hard for you Barb, to watch Lauran go through all this. My prayers are that it will eventually get better for her and You. Hugs to you both.
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